I really do not think I can adequately put into words how God displayed His majesty in the life of our son. Let me give you a quick outline of the past week:
Tuesday: Care conference with NICU doctor. By the end of the conversation, John and I were under the impression that the doctors had run out of options for Malachi. There were no more tests. His sats were dropping and there was nothing they could do. We were told to consider switching Malachi to "comfort measures only."
Wednesday morning: We stop at the church on the way to the hospital, very heavy-hearted, to have a discussion with our pastor regarding life support issues and Christian doctrine regarding babies that die. Hard stuff.
Wednesday afternoon: Arrive at the hospital. We learn that Malachi has been scheduled for heart surgery the next morning. (Immediate answer to prayer!) Meet with another NICU doc to get his opinion regarding Malachi's outlook. Not good. His thoughts were that the best way for Malachi to heal would probably be through dying. Unfortunately, we see Malachi every day, and we knew that he was probably right.
Thursday morning: Arrive at the hospital at like 5:30 AM to hold and spend time with Malachi before surgery. Shortly after being placed in John's arms, he is back in SVT with heart rates in the high 200s. Not good. Surgery postponed. Waiting, waiting, and more waiting... Mid-afternoon they take him for surgery and we wait.
Thursday night: Settled in to his room in the PICU. Not a good night. Quite a few desats that required "bagging", blood pressures issues, and heart rate issues.
Friday: Recovering, sedated, less oxygen, less nitric.
Saturday: Recovering, sedated, less oxygen, less nitric.
Sunday: Recovering, sedated, less oxygen, NO NITRIC.
Monday: Still recovering, still heart rhythm issues; but AWAKE, no nitric, and only 25% oxygen support. His heart rate tends to stay between 90-110, blood pressures have been mostly stable, and his oxygen saturation levels are consistently between 75 and 85--this is PERFECT for the type of heart disease he still has.
To go from a very, very, VERY dire outlook less than one week ago to a completely different baby can only, only, ONLY be explained as a work of God. To Him be the glory!
His disciples asked him, "Rabbi, who sinned, this man or his parents, that he was born blind?"
"Neither this man nor his parents sinned," said Jesus, "but this happened so that the work of God might be displayed in his life.
(John 9:2-3)
It is so good to hear you sound happy. I have been so heartbroken for you this week and I'm sooo thankful to hear he's doing better! Praise God!!!
ReplyDeletewhat a GREAT TIMELINE all i can say is our chargers sure have the will power dotn we ive been through so much and fourght so much there were tiems when i would atribute my strenght to grandma and grandpas good genes who wouldnt grandmas got an aunty at 98 grandpa lived with cancer two years longer than drs gave him and died in late october but now i think part of it is him and my wonderful grandma who i adore mums beautiful parents but part of it is jsut me i believe all people with special needs not jstu charge have a willpower to strive big hugs
ReplyDeleteHey Marissa~I rarely ever check the Career Step forums and when I got on there other day adn found the link to your blog, I was so saddened. I followed your pregnancy for the most part, but then started getting to busy to follow. Malachi is such a cute little guy. You are such a strong woman. My prayers are with sweet baby Chi and of course you, as I cannot imagine the feelings you are having right now. Much love!.....Rachel Brindley
ReplyDeleteTO GOD BE THE GLORY, GREAT THINGS HE HAS DONE....still praying for Malachi and for your family.
ReplyDelete? for you miscarried at 12 weeks how did you find out it was a little girl? thanks
ReplyDeleteWow what an amazing week I will keep you all in my thoughts and prayers, its amazing what God can do and how the power of prayer can work for us.
ReplyDeleteGod Bless,
Crystal and Eva
Praise the Lord! What an answer to prayer!
ReplyDeleteContinuing to pray!
We are so happy to hear this good news. Our hearts have been so heavy for you this past week and we have been praying - we know MANY others are holding you and Chi up in prayer and we'll continue to pray!
ReplyDelete