A New Day

Malachi got a visit from Grandma Kathy and his favorite sister this morning. It was so exciting, in fact, that he was asleep by the time we got around to taking a group photo.

Emma had to give him some "knuckles."
I love that you can tell that they already love each other to pieces. I think that just the immense love that Malachi will receive at home will help him more than any of his medications will. This morning Malachi was constantly trying to find Emerson and keep her in his line of vision. I love it. She will be SO INFLUENTIAL in his physical and mental development.
I'm sure, for her, the novelty of having him home will eventually wear off. But boy oh boy will those first days be amazing! Speaking of home... The new day is set for Tuesday, March 30. With the switchover to the new medication and the decrease of some of his other heart meds, his heart rate is much more consistent, mostly hanging around in the low 100s. Also, he is consistently requiring 30% oxygen, even when sleeping! This is much better than 30% when awake and up to 55% while sleeping. (He needs to consistently be less than 40% to go home).

Also, John had a chat with the clinical manager of the Peds and Infant ICU this afternoon. He was able to voice some of our concerns. I don't think it will necessarily affect the rest of his hospital stay (assuming we go home soon), but maybe it will bring some things to attention--especially from a communication standpoint--to set a better standard for other patients and their families. There just isn't a good time to expect "rounds" and that sort of thing to meet with the doctors and those making decisions regarding the care of these babies. Enough of that. It was a good day.