FIVE MONTHS!!

Today marks five months! Can you believe it??? It's been two and a half months since we had discussion with the doctors concerning their suggestion to stop aggressive treatment and switch to comfort measures only. We've come a LONG way! Not only is the new medication helping to regulate his heart rate, but he is also only requiring 25-30% oxygen support! Translation = he can come home on Tuesday!! The cardiologists want to him to have one more EKG on Monday to be certain that two of his meds (new heart med and one immune system med) aren't both having the same negative effect (prolonged QT interval) on his heart. So far, so good! Hopefully, when we get him home we will be able to stay home for a while. Miss Emma just can't wait to have him home and be able to play with him on her pooh blankie. She has it all planned out

On that note, good night.