yesterday in pics

All sprawled out snoozing in his hospital gown... He was very, very, very tired and completely spent. There was a battle raging within his little body...

Obviously not sating well... He was in the 60s all day with some dips down to the 50s and 40s. Scary.

These marks are a few days old. Last wednesday was the first time a blood pressure cuff ever left marks like this on Chi's extremities. He had dark purple streaks covering his right arm and legs.

Some bruising or something that showed up after they placed his PICC line...

Getting a blood transfusion. Here you can also see that he is still puffy and you can kind of see the swollen lymph node under his armpit.

A perfect, 6-month old developmental milestone--purposefully sucking his thumb. He's always been a finger chomper, but this is super purposeful.

On another note, the IV antibiotics that were started, the extra diuretic, and the blood transfusion all seemed to greatly impact Malachi's state for the better. They did stop a medication he was on for urinary reflux (bactrim) as well as a medication he was taking prophylactically for his immune system (septra). His rash seems to be doing a little better, but his skin is still really dry and his face his almost flaky. Not really sure what else will be on his agenda this hospitalization, but we are both excited and scared to bring baby home again! He can just go downhill so quickly that we have to maintain a healthy fear in regard to Malachi's care.

John just got off the phone with Chi's night nurse. He is sating 84% on 35% O2 support and they increased his rate on the ventilator to 15. We never know what the day will bring, but overall today was a good day. Also, John had some wonderful time at the hospital with Malachi. He said it was nice to see him actually coherent and "playing." John even got a few smiles. I think he needed that good quality time as much as Malachi did ;)