I don't have to freak out on Emma for wanting to roll around on the floor to play with her brother. Let's face it, hospitals are NOT clean. Okay, so my house isn't exactly pristine, but it's better. Way better.
Emma and Malachi...
While I was giving Malachi a bath, Emma was given permission to pick out his outfit. I think she did a great job.
flirting with mommy...
The boy does NOT like a dirty diaper. This is him ACTUALLY CRYING to get my attention to change him. Amazing!
It was clearly a dirty diaper issue because this was filmed as soon as I was finished...
I love, love, love that he is finding his voice! That is so awesome!!! MANY little ones with trachs struggle significantly with this.
ReplyDeleteHome IS so much better...yay!
I am so happy to hear everything is still going well.
ReplyDeleteI love those videos! Especially the happy one, of course! Soooo glad he's home with Emma!
ReplyDeleteWow, he seems to be doing so good! And still no time back in the hospital! That is amazing and wonderful! Thank you Jesus for this small miracle....
ReplyDeletehey there!
ReplyDeletei read your comment, marissa, and then came to check out chi's trach. i think when you come down to it, these trachs always end up in awkward positions. but a couple things that did help us with m's trach is getting a trach called bivona flexstend. it's a little bit of a longer trach that goes beyond the neck, allowing for some flexibility (this changed our lives - m had such a chubby/short neck and the trach was always pinching her or making indentations in her skin). also, we do not have moriah's suction in-line. once malachi starts moving more, and the suction gets in the way, you might want to switch over to catheters...or at least just take out the in-line while he's moving. this might help the trach be less bulky for the time being.
we are also learning as we go along so we will be coming to u for tips as well =)
lots of love,
victoria