Where We Are

Basically, Dr. N (immunology) told us there is no worldy reason that our son should still be living, let alone be in any sort of "stable" condition. The first time Dr. N laid eyes on our precious baby a month ago, he prescribed some prophylactic (preventative) medications to help his body fight off different types of infections. At that time, he didn't think any of these measures would really give Malachi a fighting chance. We can safely say that Malachi is only surviving because God has chosen to sustain him.

Not only is he surviving, but right now he is:
**not in constant pain (he definitely hurts at times and he is uncomfortable and I haven't seen him smile in at least three weeks, but you can tell that at times he is at peace);
**he is mostly breathing over the ventilator (the machine is not taking many of his his breaths for him.
**beginning to really track items (toys, etc.) with his good eye, even with limited vision.
**mastering bringing hands to mouth, actually sucking his thumb, and purposefully bringing his hands together and those types of developmental things. (most other 6-month developmental things are contingent upon hearing, which Malachi doesn't have... also, he's obviously behind with mastering head control, rolling, pushing himself up, sitting, etc. since he's been in a hospital bed for so long)

All that to say, Malachi has come a long way and has already exceeded the expectations of many. However, he is still very much in critical condition. On his 6-month birthday, we were informed that Malachi cannot create his own T-cells. This is obviously crucial to his survival. The most probable outcome is that Malachi will die of an infection before his first birthday--news that absolutely no parent is ready to hear. We have obviously gone through a roller coaster of emotions lately and have mostly been out of sorts, not really knowing how to comprehend and digest all of this.

Also, we need your prayers and support more than ever. Medically, there is no reason that Malachi hasn't already been attacked by a fatal infection. God has a purpose for our baby and we are completely overwhelmed with the responsibility that comes with being a steward of His child. If you would like a bracelet to help you to remember to pray for our baby, we would LOVE to send one (or two, or five, or twenty, etc. etc.) your way. Just email me at marissasharbaugh@gmail.com. It amazes us that people all over the world are sharing in this crazy journey with us. Your love and support are overwhelming--in the best sense of the word!