Good and Tiring

Malachi has done great at home! Besides the fact that I feel we're still missing some medical supplies we should have received, all is well. We had our first "outing" the other day--a trip to a closer hospital for an EKG test. We were supposed to have it done yesterday or today (because of an increase in his heart medication the day of discharge). Well, yesterday afternoon his heart rate started bouncing around all over the place--anywhere from 130 to 190. Naturally, this started his alarms going crazy. Praise God for a silence button (at least on one of them!). We figured, well if he's having a funny rhythm, it'd be nice to get it captured on an EKG and have the cardiologist review it. At the time of his EKG, his rate was 170. I got a call from one of the cardiologists (i think maybe an electrophysiologist) this morning asking if we could go back and get an EKG when he's running a more "normal" rate. At least getting him to and from the hospital is convenient *WINK*... or not. But, we are getting better with the practice as far as how to go about loading him into his stroller, into the car, back into the stroller, into the hospital, into the car, into the stroller, back to home. I know you have to learn how to do it with a normal baby, there are just a few more "steps" for us in the transport process. Hopefully, when his immune system is a bit better, we will be able to go more places and do normal things as a family--well, once we get that bigger vehicle. Other than a bit of a funny heart rate yesterday afternoon, Malachi has been doing GREAT! It's just way better to have him home. It's nice to be able to just lay by him on the floor (not exactly a good idea at the hospital, nasty) or just having him in the same room. All in all, a great week. I'm NOT looking forward to John going back to work though. He's been AMAZING all week! Hoping for an uneventful couple of weeks and then the crazyness of follow up appointments and 6-week visits will be in full swing... joy.