Today seemed to be better. Cardiology still does not know what, if anything, is wrong with Malach's heart or if his heart issues are in any part a cause of his continual desaturation episodes. I was there for a few hours this morning and he had one episode where he dropped into the 40s and required some manual breaths through the ventilator in order to get him back up to the 60s. It's hard to watch the color slowly drain from your child's body while his lips and eyelids slowly darken. It is obviously imperative that these desat issues are completely resolved before we can bring our baby home. For Cardiology to be able to pinpoint if there is in fact an underlying problem with the heart, they will most likely be doing a cardiac catheterization. The importance of this issue obviously supercedes the urgency of a gastrostomy tube or a tracheostomy. Pray for Malachi's heart.
On another note, John and I were able to spend the majority of the day with Emerson. I swear she just keeps getting cuter each day. Wish I was around to see more of it. One day, as hard and painstakingly tiring as it may be, we will all be under the same roof. We will once again have a new normal. It was also nice to feel like a "normal" mom and take care of some domestic duties around the house. This is where we are, for now...
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