Nothing really new is happening with Malachi. Still has a cough and some yellow junk coming out of his trach. For this, they have started an antibiotic through his vent tubing by way of a nebulizer. All of his other antibiotics had stopped. He is still super irritable and you can tell that he's just in pain.
We were supposed to have a followup outpatient visit with cardiology today. I was able to get the echo and consult done even though we are inpatient-woo hoo! (I have found that not all specialties will do this). From a cardiac standpoint, his heart is doing okay. His atria, his ventricles, his main arteries, and his shunts are doing fine. This is good news. The plan would be for a heart catheterization sometime this summer and then a heart repair (Rastelli procedure) at age one (October 2010). Granted, all of this is based upon the possible thymus transplant as well as just being in a condition stable enough for major major surgery. Please pray.
Also, Wednesday will be our care conference where we meet with many specialties in the same room and watch them discuss Malachi and where it is basically an open forum so that we can ask questions and see where we are and where we can go from here. Again, pray. We have no idea where a lot of doctors stand on Malachi's overall prognosis. This will be a no holds barred/in your face type of meeting. We will need grace and LOTS of it as we get a clearer picture of Malachi's condition!
No comments:
Post a Comment