Wednesday, February 16, 2011

Help families get to the 2011 CHARGE conference

John and I haven't quite figured out what "works" best for our family yet when it comes to fundraising for CHARGE families. Until we find our niche, we will continue to support others efforts in this process...

Meet Dominic!

You are invited to attend a very special fundraising event to help support Dominic and his friends.
Tickets are $30 for Adults, $10 for Kids age 6-12 and Kids 5 and under are free

All proceeds from the fundraising event will be used to finance ongoing medical support for Dominic Steinhauser, a 2½ year old boy who suffers from CHARGE Syndrome. Dominic is the son of Bill and Deanna (Rossi) Steinhauser. Proceeds will also be used to fund trips for other children who suffer from CHARGE -- and their families -- to attend the 2011 International CHARGE Syndrome Conference in Orlando.

CHARGE Syndrome is a genetic pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. The medical and physical difficulties differ from child to child, but Dominic suffers from vision and hearing impairment, inability to swallow (24-hour a day feeding tube) and he wears a monitoring device to check his oxygen and heart rate. Dominic and his family rely on over 10 specialists at Children’s Memorial to manage his care, as well as make regular trips to the hospital for ongoing treatment and other illnesses.

If you are unable to attend the event and would like to donate please visit his website at
For further contact information, click here.

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