Showing posts with label malachi. Show all posts
Showing posts with label malachi. Show all posts

Friday, October 25, 2013

Torn

So another big milestone is approaching.  October 27th.  We "should" be celebrating the fourth birthday of a beautiful, healthy, happy rambunctious little boy.  

Well, that dream quickly changed when John and I were brought face to face with diagnosis after diagnosis after diagnosis the first few days of his life.  The dream changed to us looking ahead and wondering what obstacles our four-year-old CHARGEr little man of steel would overcome.  Would he be able to eat on his own? breath on his own? see us? hear us? would he walk yet?  We would reflect on the setbacks and rejoice in his victories--just thankful for the four years we've had with him.

As you well know, there won't be a party to throw for Malachi this year.  He actually never made it to his first one.  It's interesting, I'm not usually all sentimental about parties for the children who are still under my care.  I don't go crazy.  I don't think about all the little details.  I'm just happy to make a cake and call it good.  I haven't even been present for two of Emma's last three actual birthdays due to church responsibilities. (The day, not the party... at least I tell myself there's a difference)

So where do I find myself this October? I find myself the entire month wishing I was planning out all the intricate details of Malachi's party.  The cake, the invites, the food, the guests, the games, etc. etc.  I find myself grieving.  I find myself questioning all over again.  I find myself wanting things the way I had pictured them.  I find myself telling God that it woud be better if... that maybe He got it wrong.

Since Malachi's death we've "celebrated" three birthdays in his honor and three anniversaries of his death.  We've celebrated the birth of Malachi's little brother, Jackson and watched him grow into an amazing little boy.  We can't help but wonder what amazing friends Emma, Malachi, and Jackson would have been growing up together.  What would he be teaching us? What would his interests be?  We put our plans for China on hold.  We've fixed up another house.  We've been called to full-time ministry.  Not in China, but in the States to international students.  We've been juggling family and work obligations.  We've been adding more ministry responsibility.  We've been pursuing an internship with our local church in preparation for missions.  We started homeschooling.  We've been busy.

All that to say, I'm in a weird place.  For better or for worse, this is where I am.  In the days approaching the 27th I'm torn.  I'm conflicted.  My stomach is generally in knots.  My natural desire is to be angry and bitter toward God, to demand my own way.  Grief has a way of shaking you to your very core.  Your emotions are up and down and pulling you all over the place.  It amazes me how quickly grief can become all-consuming.  The other night I went to check on Jackson in his bedroom.  As I opened his door, the bed was empty.  My illogical-October-brain jumped to the conclusion that he had died and I was a terrible mother for it (at least that's the Reader's Digest version)... Isn't it amazing how fast and how far your train of thought can take you?

At the same time, God is working in me and His truth, His word is battling.  There is literally a war within me and it's exhausting.  Sometimes it keeps me up at night; sometimes it allows me to sleep for three or four hours in the afternoon after a full night's rest. Sometimes I feel "put together"; sometimes I just sob.  Sometimes I'm just downright defeated; other times life feels "normal" again.  Sometimes I want to be surrounded by people; sometimes I just want to be left alone.   When I'm apathetic, I just want to feel something/anything; when the emotions run rampant, I long for apathy. Most of the time, I really just don't even know what I want.

In reflecting over the last few years, I'm thankful that I'm in a better place than I was during the silence of years one and two following Malachi's death.  I have most definitely been tested, but I think my knowledge of God is deeper and my faith is stronger.  I'm learning I've been given a platform for the gospel.  I'm also learning that I've been neglecting it.  I've been able to connect with other moms who are hurting due to miscarriage and child deaths--which has its ups and downs.  I'm honored to be allowed into the lives of these women who carry deep, deep hurt (many times alone), but it cuts deep.  Their pain becomes my pain.  Frankly, I think that's biblical. We are called to carry one another's burdens.  With the story God has trusted me, many times that invitation comes from them and I don't have to ask to be let in.  There is also great joy in learning what it means to walk by faith, trusting in what's real even if it may not be obvious. 

I am thankful for friends who have allowed me to be real and transparent with them in this ongoing struggle.  Not many truly know the day-in and day-out battles I can fight with grief.  But those who do point me to the truth of God for which I cannot fully express my gratitude and appreciation.  And, seriously, if you aren't annoyed with my conflictedness from everything I've said up until this point, try living with me.  God has blessed me with the most amazingly patient man who consistently points me to truth (sometimes when I don't feel like hearing it).  He is wise when it comes to listening, to acknowledging the pain, and generally his ministry to me goes largely unnoticed.  God knew what was in our future when He brought the two of us together.  John knew the baggage I carried with me as a fairly new believer and as the product of a divorced family.  I'm so thankful his patience with me has only grown.  

If you've made it this far, kudos to you.  I apologize if it doesn't even make sense.  Feel free to leave a comment below either here on the blog or on facebook.  It's encouraging to know I'm not alone in this.  It's encouraging to know that people remember my baby.

Sunday, March 31, 2013

Resurrection Sunday

We had a great worship service this morning. Obviously the overlying emphasis was that of Christ conquering death. I was crazy overcome with how significant this is in regard to our two kiddos we no longer have in our arms--Jordan Hope we miscarried at 3 weeks when Emma was 9 months old and then Malachi Stephen was born with severe medical conditions yet we were blessed with him for seven months. Christ's resurrection proves all that He said about Himself during His time on earth--He was and is God. Because of Christ's life, death, and resurrection we have hope, we have LIFE. Our babies LIVE!

So even though this is the visible reminder we have of our sons life on earth, we know that this is temporary. We know there is an eternity that goes far beyond this dark and depressing shadow that we call life. I'm thankful that Malachi will not have to experience the grief and heartache that I am left with until I die. (Side note: I'm learning a lot right now. If I can formulate my thoughts into coherent text, I'll share at some point)

Rejoicing in the resurrection led us here after morning service... Ashamedly, this is the first time we've been since his birthday. The cemetery is cold and depressing in the winter. Spring is my favorite. It's a reminder of God making all things new.

Exchanged the old flowers for new,
but kept the pink daisy Emma picked out from the last time...
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Emma was pretty emotional after John and I prayed at the gravesite. So we decided to take a picture of our sad faces...





But then we talked about how the tomb was EMPTY.... Jesus conquered the grave and saved her little brother. So this is us being SO EXCITED that Baby Chi isn't sick anymore!


It amazes me that death and grief and visits to the cemetery will be a normal part of our kids' lives. It definitely leads to many conversations I'm sure most parents try to avoid. I'm learning to be thankful. I'm reminded over and over again that death isn't natural. It wasn't supposed to be this way. It's a consequence of our sin--my sin and yours. But God made a way. He gave His Son. His Son lived a sinless life. Gave Himself up to a condemned death. Was raised three days later. Then raised in glory. Glory to be shared with sinners like me who believe in Him by faith. Faith that is life changing. Faith that desires to trust God and obey Him. Even if I can't see the eternal. Even in the grief. Because its not about me. It's not about Malachi. It's all about Jesus. And that's all I need.

Thursday, November 15, 2012

When it comes out of nowhere

Most days are good days now. The grief isn't quite so consuming. However, I feel this makes the pain almost worse. It's like the first year following Malachi's death was a dull ache--always near, consistent, and reassuring me that he was really gone (well a dull ache combined with the horrific pangs of sorrow and the exhaustion of life with a newborn). But that dull ache became like an ever-present companion. It was my new normal.

But then life seems to get busy and God brings you out and gives you new life once again. And the dull ache isn't so constant. So then when the pain comes its like a tidal wave. You've gotten used to not kicking your legs every moment to stay afloat and now you're about to go under. I am thankful the I have a husband who is quick to be a lifesaver, throwing me a rope of faith, reminding me Who is in the creating and sustaining of the storm.

I don't know what my normal is these days. I struggle with the ups and downs of life as a wife, a mom of littles, and the grief of my two babes no longer here. There are days of good, days that are easy even. And there are hard days. There are days like today where I'm all of a sudden hit with a blog or Facebook post that tries to shake my faith. I will not let myself become bitter about what I don't have. I will do my best to rejoice with families who have reason to rejoice over their littles.

Malachi was diagnosed with what is referred to as CHARGE syndrome--he had all kinds of internal physical deformities that came along with that. The first five months of his life were a fight to fix nose, heart, lung, and esophagus issues to ensure survival. He fought hard. He was making progress. He was later also diagnosed with DiGeorge syndrome--our baby didn't have an immune system. The only way to possibly rectify this issue was a thymus transplant. There is one little boy who had gone before Malachi with both charge and DiGeorge that I had been aware of. There is only one place where and one doctor who performs this experimental surgery. This little boy received a thymus transplant and is doing better than anyone could have hoped or expected. His mom posted a message she received from this doctor with good results they received from his latest t-cell tests. His counts are in the top quarter of all her patients at this time! What a miracle!

Unfortunately, my first inclination wasn't rejoicing with this family. It was bitterness because this same doctor denied us the chance for this operation. How despicable I am! Because this doctor is performing this procedure in such a pioneer fashion, really the first of its kind, she only will move forward with it on patients who are most likely to survive. Malachi was still requiring a ventilator for respiratory support and would also require another open heart surgery in the months to follow. God closed the door.

And because it is God who ordains the every days, I will trust Him. I will fight my battle with Satan who wants me to doubt God, to doubt His goodness, to doubt His truths--the very bedrocks that helped me persevere through Malachi's life in the hospital. I will not give up that fight. I will pray for strength to rejoice in the little (and big) victories that I see these kiddos and families take part.

Friday, November 9, 2012

thankful for music

I'm sorry my mind is all over the place.  Without writing I find it difficult to keep my mind focused.  Thoughts just keep spinning and spinning, but I can't make sense of much of it.  It's awful really.  I like feeling mentally sharp and it seems like that's the first thing to go when I'm all of a sudden overtaken with grief. Because of this, I am also thankful for music.  I'm thankful that others can put into words what my soul is trying to proclaim--and it helps that they do it much more eloquently than I would.  I think I have over 100 songs on my Malachi playlist, the following are chunks of lyrics from the most recent three...

One of the verses my friend Jenny encouraged me with in the beginning of Malachi's life was Isaiah 26:3 "You keep him in perfect peace whose mind is stayed on You because he trusts in You."  This song brings to mind this very real encouragement--this promise--that I saw God remain faithful throughout Malachi's life and death...
Sometimes it's hard to keep believing in what you can't see. That everything happens for a reason, even the worst life brings.  If you're reaching for an answer and you don't know what to pray, just open up the pages.  Let His word be your strength and hold on to the promises. Hold on to the promises. Jesus is alive so hold tight, hold on to the promises  (Sanctus Real--Promises)


I wish I could say all my questions have been answered.  But I know they won't be.  I hate that we live in this sin-cursed world, though I'm thankful that it's temporary.  Some people tell me that all of our questions will be answered when we get to heaven.  However, I don't know if I agree with that.  I don't really think my questions will matter when I get to Heaven.  I think that the reason I have questions now is because I doubt God's goodness.  It's like I "need" to know these answers because when all is stripped away I doubt God's goodness.  However, I know God's Word to be true.  I know that He is good.  When the curse of sin has been lifted, I think my questions will be gone because my doubts will be gone.  I don't know if I'll have the understanding that I long for now, but I don't know if that longing will persist.  There's my two cents, for what it's worth.  I also know that I'm still here.  There are still many good works for me to accomplish in my time before the curse of death removes me from this world...
"Why?" The question that is never far away. The healing doesn't come from the explained.  Jesus please don't let this go in vain.  You're all I have, all that remains.  So here I am-what's left of me-where glory meets my suffering...
I'm alive, even though a part of me has died. You take my heart and breathe it back to life...Breathe. Sometimes I feel it's all that I can do. Pain so deep that I can hardly move.  Just keep my eyes completely fixed on You. Lord take hold and pull me through...
When mercy takes its rightful place and all these questions fade away.
When out of the weakness we must bow and hear You say "It's over now"...
Jesus come and break my fear, awake my heart and take my tears. Find Your glory even here when the hurt and the healer collide.  (MercyMe--The Hurt and the Healer)

And finally, there's this song.  Every time it comes on the radio, I really feel like the writer was reading my innermost thoughts three years ago.  Isaiah 26:3 challenged me keep my mind stayed on God, therefore I needed something about God to fix my mind on.  God was gracious to me and the Holy Spirit continually played in my mind the following attributes of God:  He is good, He is faithful, and He is true.  I want to be remembered as one of God's faithful ones who rested in the promises of God and praised Him even when my children die and even if my healing never comes. 

Sometimes all we have to hold on to is what we know is true of who You are. So when the heartache hits like a hurricane, that could never change who You are. And we trust in who You are, even if the healing doesn't come and life falls apart and dreams are still undone. You are God, You are good, forever faithful One--even if the healing doesn't come...
Lord we know your ways are not our ways, so we set our faith in who You are.  Even though You reign high above us, You tenderly love us.  We know Your heart and we rest in who You are...
You are God and we will bless You as the Good and Faithful One even if the healing doesn't come.  (Kutless--Even If)

Thursday, November 8, 2012

You would have been three...

Malachi,

 It's me.  Your mama.  I miss you.  I go through spurts where I see God truly changing me and making me strong in my faith, and in those moments I am thankful.  I am thankful for the tangible moments of seeing God work in and through your life as well as seeing Him work in and through me in your death.  I wish I could say right now is one of those times.  Right now, I hurt.  I ache.  I long to hold you and take care of you and just love on you because you're my son.  

 Your daddy is pretty awesome.  I'm sure you know that.  I know he hurts.  I know he would have done anything possible to take your pain, even if that meant suffering himself.  He does a great job protecting and providing for his family.  I should thank him more than I do.  He's so strong for me when I'm weak.  He doesn't judge my grief and he goes above and beyond picking up the slack I leave behind during times like this.  

 I was pretty heart broken during the entire month of October.  Sometimes I wish your birthday was at the beginning of the month so that I didn't have the 27th looming over my head all month long.  See, three years ago my life was completely turned on its head.  We were so excited to meet you.  Did you know that we were going to name you Jackson David?  But before you were born, that name just didn't feel right.  Malachi is one of your daddy's favorite old testament prophets and Stephen is daddy's favorite new testament character apart from Jesus.  I am thankful for that gift of grace, even just in settling on your name which means "crowned messenger of God."  

 Sorry, little man.  I think I need to end on that note.  I'm trying to remain faithful and I'm trying to keep it together, but I really miss you.  I hate that you're not a part of our "home family".  Your sister does a great job reminding others about you.  Even though you are not considered a member of her "home family", you are a part of our "whole family."  Your brother recognizes you now.  Even just today he was playing with a card that one of your nurses "helped you make" for Emma's second birthday.  There is a picture of you inside.  He brought it to me and said, "Baby Chi, sleeping."  I'm sorry that you spent most of your days in an awful hospital bed.  What is life like for you now?  I wish I could see.  I'm trying to learn about Heaven, but it's hard for me to wrap my feeble mind around.  I'm starting to get an idea of what our future home on the New Earth will be like, but what is it like where you are NOW?

 Please know you are loved.  You are missed dearly.  Tell your sister, Jordan, hello and that we love her and wish she was here as well.  

 Love, Mama

Saturday, March 24, 2012

an infant's casket


This was prompted from a video lesson we were watching at Bible study on Friday morning and she mentioned the sight of the casket belonging to a dear friend's young child...

   On May 25th, 2010, I sat next to my husband who's arm was draped around me as we watched the heart monitor... slowing with each beat to the point where it no longer registered.  My arms cradled Malachi as he breathed his last breath.  I could almost feel the spirit leave his physical body. Lifeless... limp... cold... gone.

My heart ached.

A part of my very being was ripped away as the nurse removed him from my arms.

We left the room... our son was no longer there .

That was our encouragement to one another. Our son was now with Jesus. It was the encouragement we needed.  And it was the encouragement we gave to others as they saw our baby for the first time--lying in his casket. "He's not there."

I'm thankful God used that truth to speak peace to me... especially during the funeral when many were there who are not believers and hopefully that strength (clearly not our own) would testify to the reality of God in our lives.

I'm learning now that there is another side to it that I don't think I've full grieved over....  I loved Malachi's little body... I housed that body for nine months...  I gave birth to that body...  That little hand, I held that hand... I stroked his soft baby hair... I kissed that cheek...  I changed that diaper... I sat by that body day after day after day... That body was my son's.

And it's OKAY to miss his body and grieve the fact that I don't get to witness that body grow or hold that body... it's okay.

I am learning, though, that just as Malachi's body was loved by me, Christ's body was loved by His Father. God put his hand over the tomb where His Son lay, over Christ's cleft of the rock... Almost as if this Old Testament passage was a foreshadowing of the event following Christ's crucifixion...
     "And the Lord said, "Behold, there is a place by me where you shall stand on the rock, and while my glory passes by I will put you in a cleft of the rock, and I will cover you with my hand until I have passed by. (Exodus 33:21, 22 ESV)

Thursday, December 1, 2011

Soundtrack: Savior, Please {Josh Wilson}




Savior, Please {Josh Wilson}
Savior, please take my hand 
I work so hard, I live so fast 
This life begins, and then it ends 
And I do the best that I can, but I don't know how long I'll last 

I try to be so tough 
But I'm just not strong enough 
I can't do this alone, God I need You to hold on to me 
I try to be good enough 
But I'm nothing without Your love 
Savior, please keep saving me 

Savior, please help me stand 
I fall so hard, I fade so fast 
Will You begin right where I end 
And be the God of all I am because You're all that I have 

I try to be so tough 
But I'm just not strong enough 
I can't do this alone, God I need You to hold on to me 
I try to be good enough 
But I'm nothing without Your love 
Savior, please keep saving me 

Hallelujah 
Everything You are to me 
Is everything I'll ever need 
And I am learning to believe 
That I don't have to prove a thing 
'Cause You're the one who's saving me 

Tuesday, November 29, 2011

Soundtrack: Before the Morning {Josh Wilson}




Before the Morning {Josh Wilson}
Do you wonder why you have to 
Feel the things that hurt you 
If there's a God who loves you where is He now 

Maybe there are things you can't see 
And all those things are happening 
To bring a better ending 

Someday somehow you'll see you'll see 

Would you dare would you dare to believe 
That you still have a reason to sing 
Cause the pain that you've been feeling 
It can't compare to the joy that's coming 
So hold on you gotta wait for the light 
Press on and just fight the good fight 
Cause the pain that you've been feeling 
It's just the dark before the morning 

My friend you know how this all ends 
You know where you're going 
You just don't know how you'll get there 
So say a prayer 

And hold on cause there's good for those who loveGod 
But life is not a snapshot 
It might take a little time but you'll see thebigger picture 

Would you dare would you dare to believe 
That you still have a reason to sing 
Cause the pain that you've been feeling 
It can't compare to the joy that's coming 
So hold on you gotta wait for the light 
Press on and just fight the good fight 
Cause the pain that you've been feeling 
It's just the dark before the morning 

Once you feel the weight of glory 
All your pain will fade to memory 
Once you feel the weight of glory 
All your pain will fade to memory, memory, memory 

Would you dare would you dare to believe 
That you still got a reason to sing 
Cause the pain that you've been feeling 
It can't compare to the joy that's coming 

Would you dare would you dare to believe 
That you still got a reason to sing 
Cause the pain that you've been feeling 
It can't compare to the joy that's coming 

Come on you've gotta wait for the light 
Press on and just fight the good fight 
Cause the pain that you've been feeling 
It's just the hurt before the healing 
Oh the pain that you've been feeling 
It's just the dark before the morning 
Before the morning

Sunday, November 27, 2011

Soundtrack: I Still Believe {Jeremy Camp}




I Still Believe {Jeremy Camp}
Scattered words and empty thoughts
seem to pour from my heart
I've never felt so torn before
seems I don't know where to start
but it's now that I feel Your grace falls like rain 
from every fingertip, washing away my pain

[Chorus:]
I still believe in Your faithfulness
I still believe in Your truth
I still believe in Your holy word
even when I don't see, I still believe

Though the questions still fog up my mind
with promises I still seem to bear
even when answers slowly unwind
it's my heart I see You prepare
but its now that I feel Your grace fall like rain
from every finger tip, washing away my pain

[Chorus]

The only place I can go is into your arms
where I throw to you my feeble prayers
in brokeness I can see that this was your will for me
Help me to know You are near



Friday, November 25, 2011

Soundtrack: My Desire {Jeremy Camp}



My Desire {Jeremy Camp}

You want to be real, you want to be empty inside
You want to be someone laying down your pride
You want to be someone someday
Then lay it all down before the king

You want to be whole, you want to have purpose inside
You want to have virtue and purify your mind

You want to be set free today
Then lay it all down before the king

This is my desire, this is my return
This is my desire to be used by you

You want to be real, you want to be empty inside
And I know my heart is to feel you near
And I know my life
It's to do your will
It's to do your will

All my life I have seen
Where you've take me
Beyond all I have hoped
And there's more left unseen

Wednesday, November 23, 2011

Soundtrack: Walk by Faith {Jeremy Camp}


Walk by Faith {Jeremy Camp}

Would I believe you when you would say 
Your hand will guide my every way 
Will I receive the words You say 
Every moment of every day 

[chorus]
Well I will walk by faith 
Even when I cannot see 
Well because this broken road 
Prepares Your will for me 

Help me to win my endless fears 
You've been so faithful for all my years 
With one breath You make me new 
Your grace covers all I do 

yeah, yeah , yeah, yeah, yeah, ya 

[chorus]

Well I'm broken- but I still see Your face 
Well You've spoken- pouring Your words of grace 

[chorus x2]

Well hallelujah, hallelu 
(I will walk by faith) 
Well hallelujah, hallelu 
(I will walk by faith) 

I will walk, I will walk, I will walk by faith 
I will, I will, I will walk by faith

Monday, November 21, 2011

Soundtrack: Healing Hand of God {Jeremy Camp}



Healing Hand of God {Jeremy Camp}
I have seen the many faces of fear and of pain
I have watched the tears fall plenty from heartache and strain
So if life's journey has you weary and afraid
There's rest in the shadow of His wings

I have walked through the valleys, the mountains, and plains
I have held the hand of freedom that washes all my stains
If you feel weight of many trials and burdens from this world
There's freedom in the shelter of the Lord

And I have seen the healing hand of God
Reaching out and mending broken hearts
Taste and see the fullness of His peace
And hold on to what's being held out
The healing hand of God

And I have touched the scars upon His hands to see if they were real
He has walked the road before me, he knows just how I feel
When you feel that there's not anyone, who understands your pain
Just remember all of Jesus's suffering

'Cause I have seen the healing hand of God
Reaching out and mending broken hearts
Taste and see the fullness of His peace
And hold on to what's being held out

Cast all your cares on Him for He cares for you
He's near to the broken and confused
By His stripes our spirit is renewed
So enter in the joy prepared for you

I have seen the healing hand of God
Reaching out and mending broken hearts
Taste and see the fullness of His peace
And hold on to what's being held out

The healing hand of God
The healing hand of God
The healing hand of God

And hold on to what's being held out
(Hold on)
And hold on to what's being held out
(Hold on)
The healing hand of God, oh, oh

Saturday, November 19, 2011

Soundtrack: Your Hands {JJ Heller}



I have unanswered prayers
I have trouble I wish wasn't there
And I have asked a thousand ways
That You would take my pain away

That You would take my pain away

I am trying to understand
How to walk this weary land

Make straight the paths that crookedly lie
Oh Lord, before these feet of mine
Oh Lord, before these feet of mine

When my world is shaking
Heaven stands
When my heart is breaking
I never leave Your hands


When You walked upon the Earth
You healed the broken, lost, and hurt
I know You hate to see me cry
One day You will set all things right
Yea, one day You will set all things right

When my world is shaking
Heaven stands
When my heart is breaking
I never leave Your hands

Your hands
Your hands that shape the world 
Are holding me, they hold me still
Your hands that shape the world
Are holding me, they hold me still

When my world is shaking
Heaven stands
When my heart is breaking
I never leave You when...

When my world is shaking
Heaven stands
When my heart is breaking
I never leave...
I never leave Your hands

Thursday, November 17, 2011

Soundtrack: Move {MercyMe}


Move (by MercyMe)

I'm not about to give up
Because I heard you say
There's gonna be brighter days
There's gonna be brighter days
I wont stop, Ill keep my head up
No, I'm not here to stay
There's gonna be brighter days
There's gonna be brighter days

I just might bend but wont break
As long as I can see your face


[Chorus]
When life wont play along
And right keeps going wrong
And I cant seem to find my way
I know where I am found
So I wont let it drag me down
Oh, I'll keep dancing anyway

I'm gonna move (move)
I'm gonna move (move)
I'm gonna move

Ive got to hold 'er steady
Keep my head in the cage
Everything is about to change
Everything is about to change

This hurt is getting heavy
But I'm not about to cave
Everything's about to change
There's gonna be brighter days 


I just might bend but wont break
As long as I can see your face

[Chorus]

No matter what may come
Gotta move to a different drum
No matter what life brings
Gotta move gotta move to a different beat [x2]

I just might bend but wont break
As long as I can see your face

[Chorus x2]

Wednesday, November 2, 2011

Miracles from the Beginning

1.  We were unaware that anything was wrong with Malachi while in utero.  It wouldn't have changed anything except that there might have been a NICU nurse already present at the time of delivery.  I am almost certain I would have been a head case for at least the latter half of my pregnancy--causing more unnecessary stress on baby.

2. When choosing my doctor, I decided to go with someone close to our home in Camby, therefore delivering at the hospital in the next town over--Mooresville.  During one of my visits, she informed me that she only delivers at hospitals with at least a level 2 NICU.  Any other doctor in that area would have delivered at the close hospital and there wouldn't have been enough time to get Malachi the immediate care he needed.

3. Most babies are born with a faint heart murmur--as was Chi.  Because of the initial respiratory distress, Malachi was checked out more thoroughly.  A heart scan (echocardiogram) was ordered and this revealed not one but THREE heart abnormalities: aortic atresia, ASD, and VSD (layman's terms: his heart wouldn't pump blood properly and there was a hole between his upper two chambers and a hole between his lower two chambers.)

4. Not only was the more invasive heart exploration a miracle, but the fact that Malachi had all four properly sized chambers to his heart was also a miracle as many times aortic atresia leads to only three working chambers.

5. There is a vessel in babies which is pertinent in fetal blood flow circulation and oxygenation which connects the aorta and the pulmonary artery. This vessel (ductus arteriosus) closes up on its own within minutes to a few days after birth.  His heart issues were identified early enough that he could begin medication to keep that vessel open--his lifeline.  (Normally, when this vessel stays open--patent ductus arteriosus or PDA--it is considered a defect and may strain the heart and increase blood pressure in the lungs)

6. After the delivery, before were moved to our next room and able to see Malachi, my doctor came into the room.  The peace that God administered to us even in the first few hours of all of this is unfathomable.  We were given the opportunity to be a witness for Him before we could even THINK to be intentional about it. I was dumbstruck as she was leaning over my bedside apologizing for what was happening to us and so confused that we were just calm (granted, some of it I'm sure was shock, but there was legitimate calm and peace mixed in as well). From the very beginning John was able to testify to her of the great God we are honored to serve.

7.  His name.  In the initial 20 week ultrasound, we were told that he was a she (John wasn't convinced for a second).  He was going to be Taylor (a girl).  Baby Tay-tay as Emma called him.  At 28 weeks, however, we had another ultrasound which very clearly revealed we had a baby boy brewin' in there!  We were definitely considering a family name, like Jackson David.  As it got closer and closer to baby entry, we really just weren't at rest with any of the names we were considering.  John stated that his favorite new testament character (besides Christ) was Stephen the martyr and his favorite old testament book was Malachi.  Malachi Stephen it was.  The name was perfect.  After his arrival, we learned the meaning: Crowned Messenger of God.

Initial Diagnoses

The neonatologist at our first hospital had original

St. Francis: TE Fistula / Heart murmur, transferred to Riley due to heart deformity on echocardiogram.

Riley: The consults.

Saturday, October 29, 2011

RMH; such a blessing








Transport to Riley

Very, very early the following morning, we were able to see/touch baby after waiting for the doctors to finish up with me, then moving us from the delivery room to the recovery room hours later.  We didn't know what was wrong with our baby.  But we trusted God.  I am so thankful for the clarity of mind that God gave us especially in these first few days.

Visitors were held to a minimum, and those under 3-yrs were not allowed past the lobby. Mom pulled right up front and we met them outside. They arrive shortly after Malachi's ambulance which was still parked out front. After seeing Emma for a little while, I took Mom down to the NICU to meet baby while John spent some time with our daughter.  In the NICU, we were only allowed two people at the bedside at a time. 





The rest of the day was spent getting Malachi transferred to Riley Children's Hospital near Downtown Indianapolis (we were currently south of Indy). As a patient of the hospital myself, I had to wait for my OB to discharge me (two days early by her standards and 3-4 days early due to how much blood I had lost).  Seeing our concern as a couple to be with our baby together, she conceded on terms that I take it easy (HA!) and fill a prescription for large dose of iron. 







More about Riley Hospital to come...

Thursday, October 27, 2011

A Grandma's Remembrance.

Copied from Facebook...

Teri Hubble Sharbaugh My heart is often touched as I see him smile at me from the picture on my livingroom wall. Many times a thought of Malachi brings a lump in my throat and tears in my eyes, but as I pondered his approaching birthday, God gave me some new insights.



I thought of how thrilled Malachi must be now when he realizes that, because of his parents commitment to God during his brief time on earth, his life with all its struggles has brought glory to God (as well as encouragement to many individuals in their walk with God.) I'm positive that, as he lives in God's presence now, he is truly thankful for his parents and their part in that. Without their testimony of trust in their Savior, Malachi's effect on others could not have been so far-reaching.




Surely, Malachi is now rejoicing with others in glory and thankful to God for putting him in just the right family. And I believe that, if he could talk to us today on his birthday, he would invite all those he left behind to rejoice with him until we join him up in heaven. Perhaps at that time we'll think less of what Malachi missed in life and more about what we've been missing in heaven. So until that reunion time, with God's help, I want to choose to remember my little grandson with joy and continue to praise God that He shared him with us for seven months.